Towards Equity-Informed Care: Making Visible the Needs of People Who Are Socially Disadvantaged
By partnering with people who are experiencing social disadvantage, we want to identify some quality of life assessments that can measure what matters to people when interacting with the health care system.
People who face inequities like homelessness, poverty and stigma and who also have chronic health conditions (such as lung, liver or kidney disease) experience multiple disadvantages as their health is declining. Research shows that people who are already socially disadvantaged have many unmet needs, do not trust the health care system or its providers, and often feel judged as a result of mental health or addictions issues and/or because they may be poor and/or homeless. Research that our team has done suggests that the perspectives of people who face such inequities are seldom considered, especially when they interact with health care providers.
Our project aims to see if we can use patient reported measures, such as symptom severity and quality of life, to gain the perspectives of people who are socially disadvantaged. Our team will work together with people who face homelessness, poverty, and stigma to figure out how to best incorporate their experience into the research process, determine if and how patient reported outcome measures and patient reported experience measures could be used for people who are socially disadvantaged, and what measures might be most relevant.